December 17, 2008

Update on Braeton !

Sara has told us that the Doctors have pin-pointed Braetons diagnosis.
He has Pierre Robin Syndrome (PRS) is a congenital condition of facial abnormalities in humans. As PRS is NOT caused by a single defect gene, it is NOT a genetic syndrome, but rather a chain of certain developmental malformations, one entailing the next.
** I am sure he will be in the NICU for awhile. I am hopeful it will be only a few months but we will see over time. He will need to have a few surgeries on his jaw. The main problems with this syndrome is eating and breathing. So once the baby grows he will develop normally . When I googled it, it stated that most babies with is syndrome will grow to be normal healthy adults. Please remain to keep your thoughts and prayers with My sisters family. Thanks, Liz

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